I am a parent of a child with Duchenne and I can't thank the Patients support association enough for all the help and support they have provided. They have a team of dedicated and knowledgeable staff who are always there to answer any questions and offer guidance. The support group meetings have been a lifeline for us as we have been able to connect with other families going through similar experiences. The association also organizes various events and activities for the children, which helps them bond and create friendships. I highly recommend the Patients support association to any family affected by Duchenne.

I have been attending the support group meetings at the Patients support association for a few months now and it has been a positive experience. The association provides a welcoming and inclusive environment where individuals with Duchenne can connect and support each other. The staff are knowledgeable and compassionate, and I always leave the meetings feeling uplifted. The association also organizes social events and outings, which are a great opportunity to have fun and make new friends. I am grateful to have found a community that understands and accepts me.

The Patients support association has been a great help to me and my family. They have provided us with information and resources to better understand Duchenne and navigate the healthcare system. The support group meetings have been a source of comfort and support, as we have been able to connect with other families who are going through similar experiences. The association also offers practical assistance such as helping with medical appointments and providing access to equipment. I am grateful for their support and guidance.